Color Their World / The Mentally Ill Draw on the Arts to Help
Soothe Their Troubled Souls
By Katti Gray
For three days 1993 Glenn Garvin roamed Eisenhower Park, acting
out the 23rd Psalm under the baseball field lights he believed
were heaven's stars.
He salvaged a partly full bottle of grape juice from a garbage
bin, pressed it to his forehead, then his lips. And, in a final
act of anointing, Garvin sprinkled the drink on strangers crossing
his path during those three delusional days in East Meadow. {Correction:
Glenn Garvin sprinkled grape juice only on himself, not on passersby,
during a manic-depressive episode described in Sunday's LI Life
cover story}
It was a manic episode in his manic-depressive life. From it,
and the time two years later when he believed himself to be Jesus
Christ, Garvin has drawn some parallels: "I was born April
5, the same day that some people believe Jesus rose from the
grave. I was 33 when I went into the hospital the first time;
that's the age they say Jesus was crucified. I am a Jew. But
do you see what we, Jesus and I, had in common? I know it sounds
strange but it was a tremendous experience. I loved everybody
during those three days. I felt very much at peace with myself."
The memories streamed out as Garvin, 52, sat at a conference
table with four other poets in a Hempstead center for people
confronting the hard knocks of being diagnosed as mentally ill.
More often than not, they said, they have been jobless or underemployed,
despite advanced college degrees and desire to work. Much of
their time is spent shuttling between social service agencies
and doctors' offices. They must decide whether to swallow pills
that can contain psychotic behavior but also produce damning
side effects. They fret over how others perceive and treat them.
They view themselves, to a considerable degree, as social outcasts.
But they also find their personal chaos liberating. And there
are epiphanies they gather together and put in writing. Poems
Garvin wrote after his religious episodes and works by other
members of the group - musings of their minds and hearts - are
contained in a first volume of poetry published last year by
Consumer Link, a Hempstead nonprofit organization that serves
the mentally ill.
Consumer Link clients are finishing a second volume that, in
part, promotes a belief that the arts, from poetry to painting,
can be therapeutic for the mentally ill. The therapy is grounded
in the notion that art - whether creating it or experiencing
the works of others - can help a fragmented soul find its core.
It is not so much the artistic product that counts (given the
fluid definitions of what constitutes art) but the energy poured
into the process, proponents say.
"
The Czech leader Vaclev Havel wrote about freedom. Che Guevara
wrote about freedom. Language is about culture, people and religion.
It is about declaring your own identity," said Deborah Tunney,
47, a poet from North Hempstead who's been diagnosed with a type
of depression.
"
If I have a cold, I do not say, 'I am a cold,'" Garvin of
East Meadow interjected during that roundtable chat at 3-year-old
Consumer Link. "So, I have manic-depression. But I am not
a manic-depressive, manic-depression does not define me ... Our
poetry is a way of controlling ourselves." In addition to
crafting poetry, he is pitching to book publishers a 62-page
novella based on his mental illness.
One aim of all those writings is to stir within those who
consider themselves sane a bit more consideration for a sick
person's
plight, said Robert Langley, Consumer Link's director. His
staff of 16 paid and volunteer workers - trained as lawyers,
nurses
and what-have-you - all have been diagnosed with various
mental illnesses.
"
The stigma is still there that people receiving psychiatric services
don't ever get better, that it's a lifelong illness," Langley
said. "There are people here who have been in state hospitals
who were told they would never leave the back wards. They are
the very people writing this marvelous poetry."
Hanging on a wall at Sara's Center in Great Neck is a drawing
cast in pastels on paper. It portrays the diminutive upper
torso of a woman with a very thin neck, thrice as long
as her head
and encased in spiraling wire. Her head is tilted back,
chin jutted skyward, the irises stuck severely in corners
of her
eyes. On this and every other day that he enters the center's
Sun Room,
that piece transfixes Edward Regensburg, an artist and
certified art psychotherapist who runs the place.
"
Isn't it magnificent?" he asks a visitor, not quite expecting
an answer.
The diagnoses of Regensburg's clients range from multiple
personalities (in which one individual has several fully
developed psychological
selves) to schizophrenia (marked by hallucinations, delusions
and extraordinarily short attention spans).
"
We try to bring everybody at the center into the present moment," he
said.
Sara's Center, a private, nonprofit facility, is 24
years old. Regensburg said its menu of classes in such
areas
as poetry
and journal writing, painting, sketching, dance and
tai chi has helped
cut the number of times the center's 45 outpatient
clients have been hospitalized for treatment of a mental
health
crisis. A
1997 report by the center concluded that for the two
years prior to joining Sara's Center, 35 clients were
hospitalized
a total
of 66 times; another five required no hospitalization.
During the two years after arriving at Sara's Center,
33 required
no hospital stay and the seven who did saw their total
admissions drop to 10.
"
We don't cure anything but this is the ultimate stress reduction
program," said Regensburg of East Northport, who is also
a hypnotherapist. "What's right with us becomes what matters
and what's wrong with us falls by the wayside."
Patrick, a Sara's Center client, lives in a group
home (like others at the center who are concerned
about
being ostracized
by neighbors, he asked that his last name not be
used). He has had schizophrenia and bipolar disorder
since
he was 12,
for 40
years now. With his ailing mother in the hospital,
he realized last month he would not have a traditional
Thanksgiving
family meal, which was unsettling. As he had for
several mornings
before the holiday, Patrick was at the center creating "healing
circles," coloring blank pages with markers artificially
scented with fruit. (Aromatherapy is also a big thing at Sara's
Center.)
"
This is me being a chicken," Patrick said, pointing to the
color yellow. "This is me being blue. And this is me being
kind of dreamy like." His finger landed on mauve.
"
I come here five days a week because I love the arts. I love
culture, I love singing," he said. "I am a very emotional
person and this place helps me a lot."
Rosie's artistic bent first surfaced during childhood.
She has made greeting cards and sold them, so
her peers call
her one
of Sara's Center's more accomplished artists.
She says the distinction is meaningless.
"
You don't have to be a great artist to be in the group. All the
art is important. It helps us express the complications of what
goes on in our lives," said Rosie, 44, diagnosed 30 years
ago with what she said has, over the years, been some combination
of "manic- depression ... paranoid schizophrenia and OCD," or
obsessive- compulsive disorder.
Those complications are reflected in her piece,
framed and mounted on a wall opposite Patrick's
work, she
said. Among
other scenes,
it shows a cat, her favorite pet, and a hand
reaching up.
"
I like bright, psychedelic, Peter Max-type things. Here, in this
art, I am whimsical, happy. I have a lot of joy," she said.
These days, she is asymptomatic, in love
with a man she calls wonderful, getting along
with
her
parents
and relishing
the
community of Sara's Center.
Backed by various scientific studies, the
American Psychiatric Association advocates
music as
a form of art therapy.
But the association has no official position
on whether other
arts
are beneficial, said Kimberly Cordero, a
spokeswoman for the Washington,
D.C.-based group.
To be certain, though, there are those who
believe other art forms, given their ability
to stir
the senses, are
no different.
"
People have different intelligences. Some have spatial, some
have musical, some have other stuff. No matter what the form,
they all have benefits," said Steven Greenfield, executive
director of the Mental Health Association of Nassau County, which
launched Consumer Link. Like Sara's Center, Consumer Link has
offered art therapy since it opened.
"
We often get stuck...," Greenfield said. "The arts
create openings in the way people think. They help them get unblocked.
The arts help people identify talents they might have been unaware
of. And any talent builds self-worth and strengthens the ego."
When a stroke disabled Dr. Paul Rosenbaum
and forced him out of his practice as an
oral surgeon
a decade
ago, Rosenbaum
fell into a clinical depression. As he
inched toward recovery, regaining
the speech he temporarily lost and enough
strength to walk on his own, arboretums
and museums
became his points
of
refuge. He journeyed there, though, not
as an artist but as a budding
art lover.
"
It brought me back to the real world. Everything else looked
insignificant," said Rosenbaum, 75, of West Hempstead, as
he led 14 people through Nassau County Museum one day this fall.
Leading tours to art museums and galleries
is a regular endeavor for Rosenbaum,
a Consumer Link
volunteer.
On this day he
was holding forth on surrealist art being
exhibited at the Roslyn
Harbor museum and coaxing his entourage
to chime
in.
"
Surrealism is where you have all levels of artwork, dreams, fantasy,
things that really aren't real. When you see them you can actually
go and interpret - in your own mind - what they mean," Rosenbaum
said.
Members of his Consumer Link group
mostly just stared as Rosenbaum talked,
sometimes
nodding
in agreement,
sometimes
pushing their
faces as close as they could to the
paintings without actually touching
them. One woman
asked if she
might be excused
to eat her lunch.
Jean Popowitcz, though, was taking
it in, seizing the day as a respite
from
what
ails her. "I'd rather not go into it
but I do have a condition," said Popowitcz, 56, of East
Meadow. "I've gone on a number of these museum trips. Being
here is a lot of fun, an escape, like a mini-vacation from everyday
life."
Whether there were any fledgling artists
in the museum group did not matter,
said Gary
Hallman,
35, a Consumer
Link counselor
and ordained minister from Hempstead.
Exposing to the arts those whose lives
often are
so cloistered is what
remains
key.
"
Art gives you a holistic view. When you see how things are created,
how they start - when you see the blueprint - you also begin
to see how your own life can work out," said Hallman, diagnosed
with manic-depression at 18. For seven years now, he has been
free of any mental health crisis.
Long before he deemed the arts a
mode of therapy, Paul Nachbar was
writing
and painting.
His
work has been
shown in local
galleries and on the covers of a
couple of offbeat Long Island magazines.
Nachbar contributed poems to and
edited the first and is assembling
the second
book of
poetry,
due out next
month,
at the offices
of Consumer Link, where he earns
a small stipend for leading the poets'
project.
"
What I want to do, since poetry is a minor art form at this time
in history, is give something to the world, expand my insights
so I can - to use the cliched phrase - help others. The poetry
seems to do the trick when a lot of modalities of therapy don't.
It is connecting to the world," said Nachbar, a Lynbrook
resident who has been diagnosed with 10 different illnesses.
The poems he is helping to edit
carry such titles as "In
Search of Home," "Remember Me My Friend," "Echoes" and "The
Blues by Any Other Name."
The recent discussion among the
30-, 40- and 50-something poets
in that
Consumer Link conference
room was
equally wide- ranging.
There was laughter; it dulls the
pain, they said. But there were
also lamentations
over
mates never
found
and children
never birthed,
over feeling bullied by life. One
man who
works as a mental health caseworker
wondered how
a career unfettered by his
being labeled
psychotic might have advanced.
Even as they shun use of the word "normal," the poets
cited the ways in which they try not to stand out. And they talk
of defending themselves against mental health workers who have
what they contend is outright disdain for the mentally ill.
"
Did the staff ever try to dissuade you from ruminating, finding
a corner for yourself and just thinking?" Greenlawn poet
Sherry Taub asked no one in particular about a certain service
agency.
"
Yes," Deborah Tunney said. "They would say you were..." and
then she and Taub finished the sentence together: "...isolating."
Taub: "In the therapeutic community, isolating means..."
Nachbar: "Being too busy or too dreary or too something."
Taub: "So writing provides a means of expression in a world
that does not want to hear what you want to say."
Tunney: "...Where expression of strong emotion is often
interpreted as pathological."
Taub: "The general public sees any mental disability as
akin to being a sociopath or psychopathic murderer."
Tunney: "We might take medicine every day but we still have
gifts. To make judgments about other people based on their wealth
or perceived erudition or rank or disability is wrong."
Somewhere in that back-and-forth
was the suggestion that their
artistry is their
way of fighting
back. Consumer
Link's agenda,
in fact, includes registering
the mentally
ill to vote, lobbying for health
services members believe work,
and leading physicians
and other health-care providers
in workshops on alternative
therapies.
Kathy Dellis of Huntington Station
conducts some of that retraining.
She also has
read her poetry
on public
television.
...It could have been the dark
or a dream
or only the need to wander
into warmer territory.
It's quiet now
In the thin space between waking
and sleeping.
His grandfather rolls on his
side.
His grandmother is still,
Her hand on his bony shoulder.
Even in her sleep,
She reaches to touch.
Even in her sleep,
She loves him.
Dellis, 45, titled that "Grandson."
She believes in the power and
purity of her words. Her fellow
poets
believe the
same. "
To write poetry is me saying that I'm a person, too," said
Howard Diamond, 42, of Lynbrook. "Writing is a release even,
instead of hitting the wall or kicking the TV across the room.
That's where my anger used to go."
"
I write because it keeps me alive," Tunney said. "It
is my art and it is my survival."
Sara's Center can be reached
at 516-482-1550. To buy a
copy of
the Consumer Link
poetry collection, or for
other
information
about the program, call 516-489-0100.
© 2000 Newsday, Inc.
Reprinted with permission -
www.newsday.com
A Haven At Risk
By Joan Swirsky
It won't be easy for Patrick
John to leave the place
he calls heaven if Sara's
Center
in
Great Neck loses its lease this week. Patrick John, a 52-year-old
former
hairdresser who has attended
the not-for-profit psychiatric
day-care facility from Monday
to Friday over the past
14 years,
is among
50
adult clients - most diagnosed with schizophrenia
- who will have "no place
like it to go,'' said Edward
A. Regensburg, who has been the executive director
there since 1992.
Mr. Regensburg is trying to mobilize support "from anywhere
I can find it'' because the woman who founded the center in 1976,
Marion Berliner of Great Neck, is retiring to Hawaii.
She was inspired to establish a therapeutic center when she
was teaching art to emotionally troubled children and realized
that as they aged, they were all but forgotten. Her husband,
a surgeon, gave her the spacious, turn-of-the-century colonial
house where the center is located and provided most of the operating
funds for the first several years.
Originally Sara's Center, named for Mrs. Berliner's mother,
offered programs for people with autism, mental retardation and
learning disabilities. But in 1984, it received a state license
- as the only creative-arts therapy center in the state - to
run a day treatment program for mentally ill adults, making it
eligible to bill the state for Medicaid reimbursements.
Mr. Regensburg and his board have to decide on Friday if they
can afford to buy the house, which Mrs. Berliner still owns,
or find another location. The alternative, he said, will be for
Mrs. Berliner to put the house up for sale on the open market.
Similar homes in the residential neighborhood sell for $400,000
to $600,000.
Kathryn Meng, a lawyer in Uniondale who has been a board member
for 20 years, said the Berliners have made it clear that the
center could purchase the home from them for below-market value
and that they would supply the mortgage.
"But even with a 10 percent down payment and closing costs
and a generous rate of interest,'' she explained, "monthly
payments would be at least double, maybe triple what they are
now. What we're hoping is that with enough charitable contributions,
the mortgage can be reduced or we can buy the house outright,
which would eliminate the monthly payments, except for taxes.''
"Can we afford it?'' Mr. Regensburg asked. "Yes, but
not comfortably. If attendance remains high, we'll need an increase
of at least $75,000 in operating funds'' each year. "And
if transportation is taken away, which may happen because of
the new social-service department's restrictions, we'll need
an additional $250,000.''
He said he sent a barrage of letters to "everyone with
influence and power.''
"But it's a Catch-22,'' he added. "If you appeal to
the state, they send you back to the county, and then the county
tells you they're broke.''
He said he wanted the state or the county to subsidize Sara's
Center as a pilot program "to demonstrate how public funds
can be used to deliver quality care at a reasonable cost,'' and
he included in his letters studies that demonstrated that 97
percent of clients who attended the program were able to reduce
their medication and that 90 percent experienced a reduction
in the physical symptoms of their illnesses.
"But most people didn't respond,'' he said, "and those
who did essentially shrugged their shoulders because money is
the issue'' and government social service programs do not have
the money.
"If a person like Bill Gates heard about us and realized
the value of our type of holistic care, our problems wouldn't
exist.''
The Center is one of 85 psychiatric after-care treatment centers
on Long Island, 38 of which are in Nassau. Most are affiliated
with hospitals that offer a range of programs in satellite clinics.
As a result of such programs, the number of patients at Long
Island's three state-operated psychiatric centers has dropped
over the past three decades to 2,300, from more than 33,000.
Mr. Regensburg, a former art psychotherapist at North Shore
University Hospital, said Sara's Center is unique in its focus
on the arts and the degree to which it integrates music, art,
exercise, meditation and the skills of daily living and socializing
with traditional "talk therapy.'' Other offerings are aromatherapy,
tai chi and guided imagery.
"We offer the only alternative to the traditional, institutional
medical model of care,'' he said.
Ricky, a 43-year-old musician who has been attending the program
for 4 years, said, "At other programs, there may be one
nurse or one doctor for 150 patients, and some people might attend
the activities but lots of others just sit around and grub cigarettes
and money. That never happens here.''
Rosie, an artist whose work has been featured in several exhibitions,
is 44 and has been attending Sara's Center for over a year. She
said she had been hospitalized 15 times since her teens but since
taking a new antipsychotic drug, "I've been symptom-free
and now I can help other people. There have to be places where
people like me can go and this is the best place of all because
it's like a family, not too structured and not too unstructured."
A parent of one of the clients, Joan Millman of Westbury, said: "When
a person is diagnosed with schizophrenia, he loses all his friends
and there's tremendous loneliness. Sara's Center is like a second
home where everyone is respected and treated like a human being.
There's nothing white or sterile about the place and everyone's
art is appreciated, even if they're not a Picasso.''
Lucy Ann, 24, another client, has suffered from mental illness
since her teens and attended various programs. "It's like
a home to me here,'' she said, "and the staff are like Guardian
Angels. No other program has ever met my needs like this one.
The doors should stay open here."
Schizophrenia strikes one out of 100 people, afflicting men
and women at about the same rate. The onset occurs most often
between the ages of 16 and 25, when people are just about to
savor their first taste of independence or embark on careers
or intense relationships.
Modern research has revealed tantalizing clues to the biological
and genetic roots of the disease. Studies in Finland, Wales and
England have linked schizophrenia to damage to the fetus caused
by infections in the pregnant woman during the second trimester,
when the child's cerebral cortex takes shape. Sophisticated diagnostic
techniques and medications can now be directed at the damaged
areas of the brain with increasing precision.
Symptoms include an inability to concentrate, withdrawal, visual
and auditory hallucinations, delusions of persecution and an
inability to assess reality. In all cases, caring for oneself,
holding a job and having satisfying relationships are disrupted.
Burdened as well with a predilection to alcohol and drug abuse
- which may be forms of self-medication - as well as major depression,
about 20 percent of schizophrenic patients attempt suicide, and
10 percent ultimately succeed. This ratio contrasts dramatically
with suicide in the general population, which is one in 10,000.
Vowing to fight to keep Sara's Center open, Mr. Regensburg said, "We're
treating some of the most fragile and vulnerable people in our
society, and we can't let them down."
The article above appeared in the Long Island
Section of The New York Times on Sunday, April 2, 2000.
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